Effect of the caring ability program for family caregivers of children with cancer
Keywords:
Caregivers, Family, Neoplasms, Child careAbstract
Objective: To assess the effectiveness of the Program “Caring for the caregivers®” for the development of caring skills in the family caregivers of children with cancer treated in the Instituto Nacional de Cancerología.
Methods: This is a quantitative experimental study with sample and control groups. A sociodemographic characterization of family caregivers was conducted, as well as a measurement of the ability before and after the intervention in both groups. The Caring Ability Inventory of Nkongho was employed. This assessment tool include three dimensions: knowledge, value and patience. The groups were compared using ANOVA and the Student t test. The sample included 106 family caregivers of children with cancer, treated in the Instituto Nacional de Cancerología in 2012.
Results: Most of the caregivers of children with cancer were women, mothers, in productive age, whose occupation was housewife. They were mostly from the low and middle socioeconomic strata. These caregivers were permanently dedicated to the care of their children. Both groups had similar results in the characterization, and the results are in agreement with those reported in other studies of family caregivers as regards gender, age, occupation, and dedication to care. The group that received the Program “Caring for the caregivers”® institutional version, had better and more positive results in the caring ability, as has been seen in different applications of this Program in Latin America.
Conclusions: The applied intervention in the hospital setting is an initiative to take into consideration in the development of caring ability of family caregivers of people with cancer.
Author Biographies
Gloria Mabel Carrillo, Universidad Nacional de Colombia
Grupo de cuidado al paciente crónico y la familia, Facultad de Enfermería, Universidad Nacional de Colombia, Bogotá, Colombia
Lucy Barrera Ortiz, Universidad Nacional de Colombia
Grupo de cuidado al paciente crónico y la familia, Facultad de Enfermería, Universidad Nacional de Colombia, Bogotá, Colombia
Beatriz Sánchez Herrera, Universidad Nacional de Colombia
Grupo de cuidado al paciente crónico y la familia, Facultad de Enfermería, Universidad Nacional de Colombia, Bogotá, Colombia
Sonia Patricia Carreño, Universidad Nacional de Colombia,
Grupo de cuidado al paciente crónico y la familia, Facultad de Enfermería, Universidad Nacional de Colombia, Bogotá, Colombia
Lorena Chaparro Díaz, Universidad Nacional de Colombia
Grupo de cuidado al paciente crónico y la familia, Facultad de Enfermería, Universidad Nacional de Colombia, Bogotá, Colombia
References
Grootenhuis MA, Last BF. Adjustment and coping by parents of children with cancer: a review of the literature. Cancer Care. 1997;5 Suppl: 466-84.
https://doi.org/10.1007/s005200050116
Martinson IM, Cohen MH. Themes from a longitudinal study of family reactions to childhood cancer. Journal Psychosoc Oncol. 1988;6:81-98.
https://doi.org/10.1300/J077v06n03_06
Barrera L , Pinto N , Sánchez B , Carrillo G , Chaparro L.Cuidando a los cuidadores familiares de personas con enfermedad crónica. Bogotá: Editorial Universidad Nacional de Colombia; 2010.
Moreira P, Angelo M. Ser madre de un niño con cáncer: construyendo la relación. Rev Lat Am Enfermagen. 2008;16.
Young B, Dixon-Woods M, Findlay M, Heney D. Parenting in a crisis: conceptualizing mothers of children with cancer. Soc Sci Med. 2002;55:1835-47.
https://doi.org/10.1016/S0277-9536(01)00318-5
Jones B. The Challenge of Quality Care for Family Caregivers in Pediatric Cancer Care Seminars in Oncology Nursing. 2012; 28:213-20.
https://doi.org/10.1016/j.soncn.2012.09.003
Barrera L, Pinto N, Sánchez B. Programa para el desarrollo de habilidades de cuidado de cuidadores familiares de personas con enfermedad crónica. Index Enfermería. 2003;15.
Nkongho N. The Caring Ability Inventory. Measurement of Nursing Outcomes: Self Care and Coping. New York: Springer Publishing Company; 1990, p. 3-16.
Barrera L , Pinto N , Sánchez B . Evaluación de un programa para desarrollar a los cuidadores de enfermos crónicos. Rev Salud Pública (Bogotá). 2006;8:141-52.
https://doi.org/10.1590/S0124-00642006000200002
Barrera L, Carrillo G, Chaparro L, Pinto N, Rodríguez A, Sánchez B. Effect of the Program "Caring for caretakers": Findings of a multicenter study. Colombia Médica. 2010;42.
Corredor K. Confiabilidad del instrumento traducido al español: Inventario de habilidad de cuidado. [Tesis de maestría]. Bogotá: Universidad Nacional de Colombia; 2005.
Barrera L, Pinto N, Sánchez B, Carrillo G, Chaparro L. Cuidando a los cuidadores de personas con enfermedad crónica. Bogotá: Editorial Universidad Nacional de Colombia; 2010, p. 155-70.
República de Colombia, Ministerio de Salud. Resolución 008430 de 1993 por la cual se establecen las normas científicas, técnicas y administrativas para la investigación en salud (4 de octubre de 1993).
Ospina DE, Soto CP. Entre el rito y la rutina: el rol de cuidadora en las mujeres de Medellín. Investigación y educación en enfermería. 2001;19:58-65.
Martins VB, Angelo MA. Organizacao familiar para o cuidado dos filhos: percepcao das maes em uma comunidade de baixa renda. Rev Lat Am Enfermagen. 1999;7:89-95.
https://doi.org/10.1590/S0104-11691999000400012
Barrera L. La cronicidad y el cuidado familiar un problema durante la niñez. Revista Avances en Enfermería. 2004;22: 47-53.
Barrera L. Nutrición y estilos de vida de familias de escolares en Funza. [Tesis de Maestría en Enfermería]. Bogotá: Universidad Nacional de Colombia; 1998.
Sörensen S, Pinquart M, Duberstein P. How Effective Are Interventions With Caregivers? An Updated Meta-Analysis. The Gerontologist. 2002;42:356-72.
https://doi.org/10.1093/geront/42.3.356
Toseland RW, McCallion P, Smith T, Banks S. Supporting Caregivers of Frail Older Adults in an HMO Setting. American Journal of Orthopsychiatry. 2004;74:349-64.
https://doi.org/10.1037/0002-9432.74.3.349
Campbell AS. How was it for you? Families' experiences of receiving Behavioural Family Therapy. Journal of Psychiatric & Mental Health Nursing. 2004;11:261-7.
https://doi.org/10.1111/j.1365-2850.2003.00696.x
Liang H, Olshansky E. The Process of Decision Making About Care Practices for Children by Caregivers who are Taiwanese Temporary Residents in the United States. Journal of Pediatric Nursing. 2005;20:453-60.
https://doi.org/10.1016/j.pedn.2005.07.014
Akin S, Durna A. A comparative descriptive study examining the perceptions of cancer patients, family caregivers, and nurses on patient symptom severity in Turkey. European Journal of Oncology Nursing. En prensa, pruebas corregidas, disponible on-line 27 Mar 2012.
Söderbäck M, Christensson K. Family involvement in the care of a hospitalised child: A questionnaire survey of Mozambican family caregivers. International Journal of Nursing Studies. 2008;45:1778-88.
https://doi.org/10.1016/j.ijnurstu.2008.06.008
Pyke-Grimm KA, Stewart JL, Kelly KP, Degner LF. Parents of children with Cancer: Factors Influencing Their Treatment Decision Making Roles. Journal of Pediatric Nursing. 2006;21:350-61.
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